RESPOND-AFRICA: Stakeholder and Community Involvement

RESPOND-AFRICA: Stakeholder and Community Involvement

The patients' perspective

Panel discussions are planned which will mobilise a team of researchers, doctors and patients to discuss various themes on radio and TV.  These discussions will include segments on what our research means, how to get involved and what it’s like to live with HIV, diabetes and/or hypertension. 

In both Uganda and Tanzania, we are producing short films highlighting the patient’s perspective on living with chronic conditions. 


Our Ministry of Health colleagues in Uganda – Dr Joshua Musinguzi, Assistant Commissioner and Head of the AIDS Control Programme  and Dr Gerald Mutungia, Head of Non-Communicable Disease Control programme.

We engage regularly with senior programme managers and policy-makers in Africa so that our agenda is driven by local need.

Our links with policy-makers include the Heads of national control programmes for HIV-infection and non-communicable diseases in Tanzania and Uganda.

To support policy-makers to interpret evidence, we present the results of our studies in advance of publication.


Dr Janneth Mghamba (Assistant Director - Epidemiology, Ministry of Health and Social Welfare Tanzania) during a site visit to Mbaga hospital in Tanzania




Patients and community leaders

Filming of patient skit by TASO, Uganda

We work actively with representatives of patients and community leaders in both Tanzania and Uganda, testing out different ways of empowering these stakeholders.

We have focused on the following key questions:

  • How should we empower patients?
  • How do patients engage with health services?
  • What issues do patients with chronic conditions face in accessing care?
  • How can we enhance community involvement in our research?

Working with Hindu Mandal Hospital in Tanzania and TASO in Uganda, we have access to a network of over 34,000 community volunteers, as well as patient groups, healthcare providers, cultural and religious leaders and peer educators.

In Uganda, TASO has active drama groups within Uganda who write and perform plays on HIV-infection.  Those groups have written new scripts to focus on HIV, diabetes and hypertension, as well as recording them for local radio and TV. 

Expert Panels

In Tanzania, we have identified a group of expert patients (across the 3 diseases) who act as a key group to help advise us on research strategy and our communications materials. 


Even in COVID-19 times we maintain our links with the partnership through Zoom!

Our study nurse team in Uganda

Our central focus is to conduct the highest quality research, and collect data relevant for policy, such as data on the quality of life, health economics and on the patient perspective, so that policy can be formulated quickly, depending on the findings. By involving a wide range of stakeholders and engaging with patients we are confident that our research agenda is based on local need.

Effective engagement with policy makers ensures that our research findings can be used to inform policy, and also encourages further research into integrated care.

An article in a Ugandan newspaper referencing our work.